Fibromyalgia Diaries and Support for Newbies

This blog is about my new journey with fibromyalgia…

My “Fibromyalgia” almost went away – It is ACTUALLY LYME DISEASE

with 4 comments


I don’t really blog here anymore because I don’t have “fibro” – well, I do I suppose because I have an infection in my muscles
which a lot of doctors write off as “rheumatoid arthritis” symptoms and diagnose people with Fibro. After all, there is no damn test that says we have it, just a bunch of symptoms.

I kept this blog alive for people who are newly discovering they have “fibromyalgia” I have to tell you this….the first time, in over 3 years, I felt the “fibro” pain go away. What it is is an infection in the muscles, it took me a long time to figure this out, but it is a parasite based infection. I was put on an antibiotic called “vancomycin” and BAAAM, i felt like someone was pumping oxygen into my body, literally, my muscles were growing back in strength, and MASS, I couldn’t believe what was happening, and at the same time, my personality was changing back to who I was. This disease, takes your mind, you are not able to identify with yourself and who you really are because there are so many neurological symptoms.

If you are going to mainstream hospitals and letting mainstream doctors, like Kaiser, treat you, then you are never going to get better. Period. And I say that with confidence. If you sit here and research and research and take all of the supplements you can, you are never going to get better.

One thing you are absolutely required to do, and most rheumatoid doctors DO NOT do when diagnosing Fibro, is to RULE OUT LYME DISEASE.

– You need to rule it out with a Lyme PCR – DNA test, no other test…they are for insurance reasons, most of them are not going
to come out positive.

1. YOU do not need a rash, or ever remember to be bitten by a tick.
2. You could have these gene, and just have had it erupt in your body at some point of your life.
3. Do not ever believe an ELISA test or Western Blot at regular hospitals
4. The only person you let tell you that you have Lyme Disease and not fibromyalgia, is a LYME DISEASE DOCTOR.
5. Many doctors assume a lot about Lyme, but the fact is, they don’t know shit about fibromyalgia or Lyme Disease.
6. All of these diseases, are politically based and you are sick for a reason, this is the truth….

Some people really have fibromyagia, and some people are curable, it is up to you to find your cure, your lyme doctor, or your “fibro” doctor to improve your life.

This includes:

1. Skipping all of those blood tests that come out normal
2. Seeing an endocrinologist for all of your hormone imbalances
3. Checking your metal levels, you are highly toxic, you need to detox to make your life more manageable
4. Ever hear about candida?
5. What is your digestive health like? Have you ever had a stool test from Metametrix? I bet not….
Forget the IBS, it is probably parasites, or candida – try some natural anti-parasitics and yeast busters like oregano oil.

Some important supplements (it’s getting late, I have to wrap this up…)

1. Caprylic acid (this naturally kills yeast, try it, it will help your stomach)
2. Probiotics
3. antiparasitics – fix your stomach – this can do it – 80% OF YOUR IMMUNE SYSTEM IS IN YOUR STOMACH, this is where you develop
all of those “chemical sensitives” as well.
4. natural anti virus herbs and capsules (you have tons of infections in your body that are not showing up on blood tests)
5. Check your nutrition levels (find someone that does Zyto testing, check out what is REALLY going on in your body, blood tests,
are the world for environmental illnesses and infections, your MRIs will all be normal.
6. Buy some activated charcoal for a natural detoxer ($10 bucks at the health food store)
7. Buy some CoQ10 for your muscle health – buy a quality brand
8. Try electromagnetic therapy for some energy or to kill things in your body at a low frequency
9. Try an EMEM Bulb rife machine – probably around 500 bucks and follow rife treatment guidelines
10. Try some antibiotics, and see how you react, if you react in anger, or any emotional problems, that is called a “die-off” or “herx” reaction and you are killing something in your body which is releasing a toxin into your body that is making you act this way – this is a good sign actually, because it means you are infected.

Get a Lyme PCR. Google Igenex labs. Also go to lymetap.com to get funding for your tests if you don’t have insurance or are on a budget, the tests are expensive and it is easy to get approved. They will pay for 70% of your tests.
That is a great deal and how i got my funding for my tests.

I hope this helps someone, I wish I wouldn’t have believed my doctors, I was healthy my whole life, and knew I had Lyme from the get go, my doctor screwed me big time, and I wish I could find a lawyer to sue her, she deserves a slap on the wrist for what she did to my life when I knew what was wrong. The medical system made me believe I had fibro for over 2 years, and thats why I had this blog, I took supplement after supplement trying to fix myself, when all i needed was some antibiotics for a few months. This started when I was 28, and now I am going on 32, and this is not near over…..

Good luck.

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Written by Mobile Speech Pathologists

March 27, 2012 at 10:06 am

4 Responses

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  1. You are 100% right. I was so ill and I didn’t know what to do or where to go. I finally went to a doctor and he said “You have an auto-immune disease” we don’t know which one just yet. We did all kinds of tests and I had Lyme disease. I’ve been VERY AGGRESSIVE and doing dozens of things to detox, rebuild, and kill the pathogens (Lyme+ all the other stuff) and for the first time in two years I fell a little like my old self. Geez it was crazy. The key to success is consistency. The bacteria keep growing so you have to keep killing them and eventually the tides will turn where the immune system kicks in and then they don’t stand a chance!

    JohnElligott

    April 27, 2012 at 10:40 pm

  2. Fibro is LYME. I agree with this 100%! I’m recovering from Lyme now. Been at it for 6 months and real, real close to kicking this thing out of me. Doing LOTS OF THINGS but the VERY most important was to know the diagnosis. Before that I was treating TMJ, Fibro, muscle pain, anxiety, depression, all kinds of stuff. It didn’t make sense why my entire body went out of whack just because I had some stressful situations. Now it all makes sense. IT’S LYME!!

    JM

    August 11, 2012 at 1:43 am

  3. Hi. I have been diagnosed with fibro but non of meds so far have helped. I was brought up on a farm and always in grass and God knows what. Then when 16 I worked on huge dairy/arable farm. Again into everything! I could Well have been bitten by a tick more than once and not know or remember it. I have been doubting the diagnosis because of this reason. I intend on asking my GP about this and pushing for the proper test. Do you think this is a wise decision.

    joy

    August 20, 2013 at 8:29 pm

    • test through Igenex labs in Palo Alto. Try lymetap.org if you need help paying for the tests. I think it’s a very wise decision. The earlier you start treatment the better, do not wait, at all. Even if your test is negative, I would treat…see how you feel after a while. Tests are not really accurate, treatment, and how you feel afterwards is what is indicative.

      faith80

      August 26, 2013 at 8:46 pm


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